"This is the day the Lord has made, I will REJOICE and be glad in it" Psalms 118:24

Saturday, December 26, 2009

Our Surgery Journey!

Our morning started off bright and early at 3:45 a.m. for his last feed. However, Mommy had been up since around 3. Praying and thinking of that day. Fed Mister man, then we woke daddy up around 5a.m. to help get Hunter ready while Mommy got dressed and got the bags by the door. At 6:00 we headed out the door to Wolfson’s!

When we arrived. Chuck, Steve, and Nana were waiting on us and a few short minutes later Big Pa and Grandma Pam arrived to see Hunter before his big endeavor. Uncle Chuck was so sweet to have brought Jarrod and I coffee that morning. We also received some goodies from our church family and nana. We were so blessed to have snacks that morning and our entire stay.
We then proceeded to the 2nd floor to check in. Hunter got his ID bracelets and put on his cute little gown. They then weighed him and he was a whooping 10lbs 8 oz. He gained half a pound in 1 WEEK! Woohoo.. This is Huge for him! After all our checking procedures were done we went back to the waiting room to wait and be called back. Hunter by this point was starving. He hadn’t been able to eat since 4:00 that morning. I felt awful and I couldn’t get him to settle down. So then I passed him to daddy and sure enough. Daddy calmed him and he slept peacefully! What a joy it is to watch my 2 boys together!
At 8:00a.m. we were called back. We sat with Hunter and talked with the nurses, signed the consents, talked to anesthesia and then we Steve came back to pray with us before our sweet baby boy was taken into the O.R. What a blessing it is to have our strength come from the Lord. I could not have held it together without the blessed strength of Jesus Christ! A little bit after our nurse led us to those “Famous Double Doors”. We took our family picture and then kissed our sweet boy and told him we would see him VERY soon! Then the nurse swifted him away. I just quickly walked to the elevators with everyone. I teared up as we left but knew that the Lord was taking good care of my baby. (Remember, the day before when I said that I was going to FULLY trust the Lord, well here was my first step) It was tough to watch my baby be taken away but The Lord is so sweet and gracious and would see me through.
Jarrod and I went back to the waiting room and were accompanied by all of our loved ones. We all got to pray together and just be with each other while Hunter was in surgery. We are truly blessed that we got so many updates during the surgery. Not only by our nurse but by our cardiologist. He is truly amazing and so caring! Around 2:30 we got the call that they were closing up and that he would be ready in about an hour for us to see him! Praise The Lord. Dr. Ettedgui said that everything went amazing and that it was a “Beautiful” repair! My heart smiled and thanked the Lord when I heard those words! When we got to see our sweet baby he was heavily sedated and sleeping well! He looked great for all they had to do! I was so thrilled at this point to see Hunter and be able to touch his sweet hands and face!

Thursday Morning, they decided to take out his breathing tube. I was so excited and nervous. They proceeded to take it our and within seconds he went from stable and well to Not good at all. When it was being taken out he held his breath and all his stats began to fall. The Dr. and nurses began repeating “come on little guy breath” I began to panic and cry. Jarrod kept asking me if I was okay, and of course I said that I was but clearly I wasn’t. Jarrod was being strong for the both of us, I knew that he was just as terrified though. They began to manually pump air into his little body while setting up all the required accessories for the C Pap machine. About 30-45 minutes later, he was stable and being assisted by the C-pap machine. I thanked the Lord for holding onto my little man during that scary process.

Friday morning Hunter continued doing well. We were told that they were going to wean off the C pap and put him on a simple nasal breathing tube. Around mid day they came and removed the C-pap, chest tube and catheter! Woohoo. I couldn’t believe so many things at once! An Added blessing! He was doing fantastic! At this point Hunter only had his Aline (in his wrist) which was removed that evening, Pacing wires (not on the pace maker), and the central line in his neck (for antibiotics and pain meds).

Saturday morning, I woke up and Hunter was awake and very verbal. Cooing and happy! =D His skin looked a little modeled and his heart rate was a little slower than I had seen previously. The nurse said that during the night he was sometimes missing his “P” wave. They decided to give him some meds to help his heart squeeze a little better. It seemed to help quite a bit. Slowly his skin began to look better! All of his stats still looked great! Praise the Lord! His nasal breathing tube was removed around 8. He was so funny and happy to have that thing out. He kept scratching his nose and swatting at it.

Sunday- Hunter is improving so much every single day. He is now eating 3.5 to 4 oz a feeding! That is HUGE for him. His stats are very good today and his coloring is getting better and better. His pulse is strong . They gave him a dose of heparin this morning to make sure that his central line doesn’t clot. He was still getting a blood return from that IV spot, which the nurse informed me was awesome! They are weaning all of his IV drips today and giving to him orally and after a few hours they want to try and get him to a regular floor!! WOW, I can’t believe it! We are so much closer to being home!

Monday- this is our first morning in our regular room. We had a really great night. Hunter woke up in a great mood, smiling and cooing all morning. We got his pacing wires and central line out today! He was really upset from all of that an cried pretty hard for about an hour. I felt so helpless. I couldn’t help him feel better no matter what I tried to do. Mommy wanted all the pain to go away! We then had x-rays and an echocardiogram done. Dr. Ettedgui was in the room during his echo (we really love how personable our dr is) and said that Hunters heart looks great, It is beating well, less leakage than they expect to see (normally after a repair both valves will leak a bit and Hunter only had very minimal leaking on 1 valve), and He is healing great! We were also informed that we will hopefully be heading home tomorrow or Wednesday! We are (Lord willing) going to be home for Christmas!!!!! Hunter nursed for the first time this evening!! What a joy that was!!! After 3.5 months of exclusively pumping he is now a NURSING baby!!! I LOVE NURSING Hunter! It is such a wonderful and sweet time for the 2 of us!

Tuesday- Hunter woke up just cooing away. So we nursed and then went down to get his LAST chest x-ray!! Praise The Lord, It looked GREAT! When we were done we went back to our room and waited for the Dr and Stacy (one of the Dr’s in our cardiology group) to come see us and check out Little man! Stacy came in around 9ish and said that he looks great and that he is recovering just beautifully then stated “so, how would you like to go home today”.. oh those amazing words! I just lit up with excitement and joy to be taking our baby home! Praise God! She said that the Dr would come in to see him then they would get the Discharge papers ready and would have us out of the hospital! Woohooo.. JOY, JOY, JOY! We finished up all the paperwork and were headed out of the hospital around 11:35ish. I can’t tell you enough how AMAZING it was to take those first few steps into our house again! Our Family was now all together and healthy! What a wonderful Christmas blessing!

Tuesday, December 15, 2009

What a sweet gift!

I have been so encouraged this morning! What a joy it is to have read a wonderful journal entry from another godly sister!! I don't even know her, yet her words show her fruit, her love for her almighty savior and her willingness to let GOD be totally in control of her life! What a blessing it is to me to read that this very day!

This morning I have been struggling with "letting the Lord be fully in control". I sit here and wonder if there is anything I can do to help Hunter and I realized there is. I can let the Lord, my Almighty savior here my cries and rely on him to get us through! I can not do ANYTHING without him. He has his hand over all that happens and that will happen. I have to fight my flesh today and not make this about what I can do but What the Lord can do! The Lord calls me to lean on him for strength and he will strengthen me in my time of need! His will is perfect!

Isaiah 41:10
"Do not fear, for I am with you; do not anxiously look about you, for I am your God
I will strengthen you, surely I will help you, Surely I will uphold you with My righteous right hand."

I don't have words to say how thankful I am to have been given this WONDERFUL opportunity to be given my sweet little boy. Thank you sweet Savior! He is such a joy and everyday I fall more and more in love with him. The Lord has given us this precious baby to instruct and raise for him, I strive for Hunter to know his savior and love him with all his heart!

"And I'll fall facedown,
As Your glory shines around.
Yes i'll fall facedown,
As your glory shines around.

Let your glory shine around,
Let you glory shine around.
King of glory here be found,
King of glory. "

So, today instead of sitting here being terrified and frozen with fear of all the "what if's". I will rejoice! Tomorrow has its own worries right? so why sit and indulge in my fears! I will rejoice in all the time I have had with Hunter so far, the sweet smiles, his sweet little sounds, his cry, how mommy and daddy can calm him in an instant and all the wonderful memories yet to come! I am not going to say that I won't shed tears or sob but I will joyfully remember that The Lord loves and cares for my family! I have hope in a risen savior! I am so thankful for your grace and love for me!

Thank you for listening and please keep us in your prayers. We are so gratful for you all and love you more than you know! Thank you for being loving & supportive!

In Christ's Love

Sunday, December 13, 2009

Heavy hearted..

Well, the upcoming surgery has hit home tonight... I walked into Hunter's room to get a blanket to swaddle him in and I felt my heart sink into my stomach and my eyes start to wail up. I'm not exactly what made my mind think about it that very moment, but It was so overwhelming and it still is. I am TERRIFIED! I feel like there is nothing that I can do for Hunter. Jarrod continues to tell me that we must rely on the Lord for His will for our sweet boy, and I am trying my hardest not to feel like I can control any part of this, I know that only the Lord can. But,I am a fixer by nature, so this is so tough for me. I wish that I could take this all for Hunter. I am so sorry that this post is far from being "all together". I guess everyone has to be vulnerable sometimes. I am sure that it might sound scattered but I am just writing as I am going.

Please continue to pray that I lean on my SWEET SWEET Savior for strength and reliance. I can NOT do this with out him! He has been faithful yesterday and today and I know that He will continue to be faithful tomorrow!

"This is the day the LORD has made, I WILL rejoice and be glad in it"

Speechless Sunday

Friday, December 11, 2009

Our Gift

I was playing around with a photo editing site and made our little christmas picture for Hunter! Hope you all enjoy and are Praising the Lord for this wonderful time of the year! He is the Reason we celebrate!

Wednesday, December 9, 2009

Surgery Rescheduled

Good Afternoon Beloved Brothers and Sisters!

Well today would have been Hunter's Original surgery date, However yesterday we completed all of Hunter's Pre-Op criteria (everything was perfect and healthy) and we came home with LOADS of things to prepair and get ready for surgery and then recieved a phone call. Pam (our surgeon's nurse and secretary) said that they were going to have to re-schedule the surgery for Next wednesday due to the patch that will repair the 2 holes didn't come in. They are on a nation wide back hold. She did inform me that they could have done the repair but they wanted to use the best possible patchs on him for a more perfect repair. I was so thankful to hear that they were looking out for my sweet boy! Jarrod and I however was left feeling upset because we had been preparing the best we could emotionally and physically for the surgery in the Morning and now were were going to have to wait another week. I do see this as a huge blessing. The Lord's timing is far better than what we have planned and this is another way the Lord is showing us that he is in control and that no matter how "prepared" we are he can change it at any given moment!

His surgery is now set for Wednesday December 16th at 8:30. however we must get there for more paperwork and get him ready for surgery at 6:30 a.m. There is alot of prep work the night and morning of his surgery for us to do. But it is a joy to be able to take care of my sweet baby and give him all that he needs!

We also talked to the Dr's about family and friends donating blood for his surgery and I would love to extend this to all of you. if you are willing, please feel free to email me and I can give you further details. The deadline to give blood will be this Friday December 11th.Due to the blood alliance needing time to screen, match and test all of the blood and get it ready for the hospital. Hunter is O positive. However if you are not O+ or O- (universal blood type) all the Blood donated will be credited to his account and will help with our hospital bill.

Now for some fun Information:
I am SO excited to announce that Hunter FINALLY weighs 10 pounds!! woohoo
He weighs exactly 10lbs 1 oz
His head circumference is 38 cm which is 4 cm since birth =D
and He is 60cm or 23 3/4 inches long! ths is almost 4 inches since birth!

He is growing so well! I am so excited to hear all the wonderful changes that he is making and this time next week we will be well on our way to having Hunter's little heart working so much easier! =D
I am so thankful for the Lord's wonderful grace to provide the dr's the knowledge and skill to perform this surgery! It brings me so much joy to see the Lord's Handiwork!

We are so thankful for all of your prayers and are so thankful for all of you. We continue to praise the Lord for all that he does and pray for strength and reliance during this.

In Christ's Love,

Saturday, December 5, 2009

My sweet blessings....

Hunter On his horse.

Hunter's 3 months old!

Mimi And Hunter

My STUDLY Husband! His smile melts my heart

Again, This man melts my heart! Thank you Sweet Savior for my Husband!

I got the most wonderful gift from my sweet mom! A Canon Digital SLR! This makes my heart smile! I was so blessed to get this early, I wanted to take tons of pictures of my sweet little boy before and after his surgery. I am going to call it "journaling" his journey. =D

Thursday, December 3, 2009

Woohoo for Positive results!

Yesterday I recieved a call from Endocrin about his blood results and everything IS PERFECT! All Hunters horomone levels are just as they should be! What A COMPLETE BLESSING! I was so excited when I heard the great news! They said that his body is doing everything that it should be doing!
Thank you sweet Savior for this gracious gift!

My Strong Boy Rolling Over Again!

Down Syndrome Awareness

My sister posted this on her facebook page and its raising awareness for Down Syndrome! Praise The Lord! I have been given the biggest blessing to raise a Down Syndrome little boy and I strive everyday for Him to be given every possibility! Hunter is thriving every single day and is amazing me more and more! He is so strong! Our Doctors are in Awe of him!! My sweet savior has blessed us so incredibly much!